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The Parkinson's Disease Nurse Specialist


“The nurse knows both sides of it. She knows the clinical side and the practical side - what is going to happen and what you need”

  • Parkinson’s Disease Nurse Specialists (PDNS) are becoming more common across the U.K. They are highly experienced and expert nurses who work all their time with people with Parkinson’s disease, and with their families and carers. 

  • The PDNS can help people with PD and their families to better understand and accept their diagnosis, by providing education, support and counselling.

  • They can advise on how to manage PD symptoms and when it is appropriate to refer to another member of the multi-disciplinary team (e.g. physiotherapist, occupational therapist, speech and language therapist etc.).

  • They act as a link between the person with PD and the specialist doctor and other health professionals involved in care. They also help the family doctor and carers to provide the best day to day care.

  • Making the best use of medication is an important part of the role of the PDNS. They can advise on managing side effects and on the timing and dosing of drugs for PD.

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  • The PDNS can also advise on any other practical information that is needed, such as financial benefits and help from social services. They will know where and how to gain specific information and about useful facilities in your local area.

  • Sometimes the PDNS organises education and support sessions where people with PD and their carers can learn more about all aspects of the condition and share experiences and concerns with others.

  • The PDNS will try to anticipate possible problems you may develop and ensure these are minimised.

You may be able to refer yourself directly to a Parkinson’s Disease Nurse Specialist, or can ask your hospital specialist how to contact them.

The UK Parkinson’s Disease Society (telephone +44 (0)20 7931 8080;) will also be able to tell you whether there is a PDNS locally and how to contact them.

A report on the work of PDNS, ‘Changing roles : the impact of Parkinson’s disease Nurse Specialists’, published in 2003 is available at www.parkinsons.org.uk

The Parkinson’s Disease Nurse Specialist Association website is at www.pdnsa.org.

This site has been established for the dissemination of information. While every effort is made to ensure that information on this site is accurate and current we accept no liability for any omissions or inaccuracies that may have crept in. If in any doubt please contact your doctor for further advice.

Last Modified 13 August 2004
Maintained by Matthew Harris