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Useful written material (books and leaflets) for carers of people with Parkinson's disease


  • The Parkinson's Disease Society (tel 020 7931 8080) publish a range of booklets and information sheets on all aspects of PD. Many are available free of charge.

  • There are many excellent books providing background information about PD and its management, as well as more general books giving advice on caregiving. They should be available via your local library, or for purchase from bookshops, or online from www.amazon.co.uk

  • 'Caring for the Parkinson's patient: a practical guide', by Thomas Hutton, Ray Lynne Dippel and Nathan Slewett, published in 1990, by Prometheus Books UK. ISBN 0 879 755 628

  • 'Parkinson's At Your Finger Tips', by Marie Oxtoby and Adrian Williams, published in 2002 by Class Publications, London. ISBN 1 872362 96 6

  • 'Parkinson's Disease: A Guide for Patient and Family, by Jacob Sage and Roger Duvoisin, published in 2001by Lippincott, Williams and Wilkins. ISBN 0 781 729777

  • 'Parkinson's disease: a self-help guide for patients and carers', by Marjan Jahanshahi and C David Marsden, published in 2000, by Demos Publishing Inc. ISBN 1 888 799 382

  • 'Understanding Parkinson's Disease', by J Pearce and Tony Smith, publishing in 2000 by Family Doctor Publications, London. ISBN 1898 20 5868

  • 'Parkinson's Disease: A Self-care manual', edited by RK Griffiths and EH Coene, published in 2000 by the September Foundation, Amsterdam. ISBN 90 72248 481

  • 'Parkinson's Disease: 300 tips for making life easier', by Shelley Peterman Schwarz, published in 2002, by Demos Medical Publishing. ISBN 1 888 79965X

  • 'Choices for the Carer of an Elderly Relative', by Marina Lewycka, published in 2004 by Age Concern Books, London. ISBN 0862 423 759 

  • 'The Parkinson's Disease Handbook: the essential guide for sufferers and carers', by Harvey Sager, published in 2002 by Vintage/Ebury ISBN 009 188 3873

  • 'Carer's Guide to moving and Handling Patients', by Peter Chrisp, published in 1999 by The National Back Pain Association. ISBN 0 953 058 263
  • 'The Carer's Handbook', published in 1997 by Dorling Kindersley. ISBN 075 130 4646

  • '100 Questions and Answers about Parkinson's Disease', by Abraham Lieberman, published in 2002 by Jones Bartlett Publishers International. ISBN 07637 04334

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This site has been established for the dissemination of information. While every effort is made to ensure that information on this site is accurate and current we accept no liability for any omissions or inaccuracies that may have crept in. If in any doubt please contact your doctor for further advice.

Last Modified 13 August 2004
Maintained by Matthew Harris