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Sharing the caring-accepting outside help


"I found I couldn't do it all on my own - but it was difficult letting other people into our life"

  • §Most family carers and friends regard caring as a duty. For many it is an act of love and they take on the role with great commitment. This can make it difficult for them to let go and to accept help from others.

  • §People with Parkinson’s disease (PD) will inevitably need more help with caring as the condition progresses. As time goes on, it is seldom possible for one person, however committed, to provide all the care that is needed. 

  • §Having time off from caring has advantages for both carer and cared for. It allows you to recharge your batteries and to maintain a positive relationship.

  • §The aim of involving outside care services should be to support family carers and friends, so that they can continue to care for as long as they wish.  It is not a matter of failure or relinguishing your responsibilities.

  • §Allowing strangers into your house to share care, or encouraging a break away for a short time can be a very difficult step.
  • §It is usually best to accept help when it is offered. Accepting help sooner rather than later can help to maintain quality of life of both cared for and carer and may avoid a crisis.
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Your doctors, specialist nursing staff or social worker can advice on sources of support and outside help.

The Parkinson’s Disease Society (telephone 020 7931 8080) can provide information and support to carers. http://www.parkinsons.org.uk

Useful books include:

Caring for the Parkinson’s patient: a practical guide’ by Thomas  Hutton, Ray Lynne Dippel and Nathan Slewett (editors). Prometheus Books .UK. ISBN 0879755628

Carer’s Handbook: A practical guide to looking after ill, disabled and elderly people. Dorling and Kindersley. London. ISBN 0-7513-0464-6

Useful websites include:

Care directions - UK internet guide to care and rights of elderly

Princess Royal Trust for Carers

This site has been established for the dissemination of information. While every effort is made to ensure that information on this site is accurate and current we accept no liability for any omissions or inaccuracies that may have crept in. If in any doubt please contact your doctor for further advice.

Last Modified 13 August 2004
Maintained by Matthew Harris