||Sharing the caring-accepting
"I found I couldn't do it
all on my own - but it was difficult letting other people into our life"
family carers and friends regard caring as a duty. For many it is an act
of love and they take on the role with great commitment. This can make it
difficult for them to let go and to accept help from others.
with Parkinson’s disease (PD) will inevitably need more help with caring
as the condition progresses. As time goes on, it is seldom possible for
one person, however committed, to provide all the care that is needed.
time off from caring has advantages for both carer and cared for. It
allows you to recharge your batteries and to maintain a positive
aim of involving outside care services should be to support family carers
and friends, so that they can continue to care for as long as they wish.
It is not a matter of failure or relinguishing your
strangers into your house to share care, or encouraging a break away for a
short time can be a very difficult step.
is usually best to accept help when it is offered. Accepting help
sooner rather than later can help to maintain quality of life of both
cared for and carer and may avoid a crisis.
Top of Page
Your doctors, specialist nursing staff or social
worker can advice on sources of support and outside help.
The Parkinson’s Disease Society
(telephone 020 7931 8080) can provide information and support to carers. http://www.parkinsons.org.uk
Useful books include:
Caring for the Parkinson’s patient: a
practical guide’ by Thomas Hutton, Ray Lynne Dippel and Nathan
Slewett (editors). Prometheus Books .UK. ISBN 0879755628
Carer’s Handbook: A practical guide to looking
after ill, disabled and elderly people. Dorling and Kindersley. London. ISBN
Useful websites include:
Care directions - UK internet guide to care
and rights of elderly
Princess Royal Trust for Carers